Friday, May 29, 2015

The story continues...

I often wonder if anyone actually reads my ramblings. Well trying to put it the claim for my prosthesis here at Medicare.  One of the big ones in the southeast burbs, very multicultural which I love. Someone clearly thought it would be a good idea to combine Centrelink and Medicare, but for those if us with immune issues it just means more germs..screaming children,  hacking coughs and long frustrating waits.
I love all the signs around the place asking phones to be turned off, and I was going to leave mine in my bag. As I looked around nearly every one is talking or tapping on their phones. So meh, so will I!
Took a while, finally got processed, then off again to get crutches for the boy.

Wednesday, May 13, 2015

Passing and failing

Arghhhhhh
A month since starting Xeloda, 4 tabs , 14 days on 7 days off.
Feeling incredibly tired, sleepy, yet not able to sleep, but when I do I am a log.
Only side affects have been increased nausea and the start of mouth ulcers.
But when I went in for my xgeva / denosumub shot yesterday I found out I had "failed my bloods" my white blood cells and neutrophils were both lower than they should be.
Onc ordered an urgent blood test to see is they had fallen further, and he wasn't happy. So reducing to 3 a day, and shortening the cycle I am on....
As I sit here....in my year 9 class all I can hear is snuffling.... Argh... 
Germs everywhere, wearing gloves and wiping with antibacterial wipes.