Saturday, March 22, 2014

ABC forum at.QVWC

On the train when bed would be a preferred option, but off to the BreaCan forum on Advanced Cancer...

The role of nutrition in cancer management

Dr Maree Brinkman
Will be podcast on the BreaCan website

Contribution of diet related cancer ranges for 10/70 % average is 35%
World cancer research fund
Low gi is better
Cancer cells love sugar
Non starchy vegies are good for protection...leafy greens

Processed meats not good...as well as high salt have nitrites and nitrates

Healthy weight range
Try to stay between healthy BMI
Exercise physiologist
Fresh is best, frozen is good alternative as all the goodness is snap frozen
Eat seasonally
Avoid/limit alcohol - as it affects metabolism of folate as well as other issues
Keep up fluids

Vegies...mix up colours, 5 serves, limit starchy vegies 1/2 dinner plate
Fruit...2 serves ...keep in moderation
Grains 4-6 serves 

Proteins
2.5 serves per day
1/4 of the dinner plate 
Tofu...caution with hormone sensitive ...including soy milk

Dairy - calcium rich foods
2.5 - 4 
4 serves for post menopausal
Sardines, salmon, leafy greens

Dietary fats

Treatments
Surgery add protein
Chemo
Radiation

Riboflavin helps with mouth sores and ulcers
Coloxyl and senna
Soluble fibre
Psyllium husks

Bloating and discomfort...
Avoid drinking large amounts of water and hour before and half an hour after a meal

B1 and B12 good for improving tingling and numbness

Bleeding...would that also be bruising? Forgot to ask

Dietary management and suggestions
Fluids - foods with high fluid
Variety

Supplements...if it is strong enough to have an effect it has the potential to cause harm
Glutamine and green tea... Can cause issues as can...
Beta carotene vitamin e and selenium

Extreme diets can throw out the balance


Anti oxidants can inhibit the effect of chemo
In Moorabin
Check on google
Get referral from GP


Shrinking the worries
The art form of living with advanced cancer

Life does not fit Ito a PowerPoint text box
Life is a mystery
Amma

"How to stop being a zombie and really start living"

The power of language

Entirely understandable to and "normal" that there are worries fears and concerns
It's how we manage them that can make a big difference to our lives

Name your worries
Identify what is most worrying for you helps you to target your attention

Key care givers need to know our priorities

Process to help with creating steps to manage an issue


Threatening and disabling
If a worry feels unmanageable or overwhelming
->
Try to work out what you would need to bring it into a more manageable shape...
Eg: make smaller steps
Help/resources
Identify the room for growth and change
Understanding
->
Enabling and motivating
Breaking the worry down into parts that you can tackle
Finding the help you need to do those things
Working out what comforts/reassures/encourages

Foreground background
What things bring cancer to the foreground
  • Pain
  • Appointments

What things help you place it in the background
  • Watch a movie
  • Read 
  • Go or walk
  • Meditate
  • Make and do

Being able to operate the switch between the two

Making friends with uncertainty
How can we embrace uncertainty and still find equanimity
  • The shallow "I'm good" responses
Living with mortality
  • This is life
Coping with the "what ifs" and the "possibles" that can assume power
  • What coping mechanisms
Finding anchors that keep us steady
  • Hugs
  • Values
  • Growth
  • Simplify life

Learning to be present
Not dwelling in the future fear or dwelling in the past
  • Enjoy the present
  • Meditate
  • Breathe
Coming into just this moment
Cultivating calm awareness
  • This can be an art form
  • Don't sweat the mll stuff, when you can
Hope is different to denial
  • Daring to hope
   We can hope, we have to hope
  • We can hope or things each day
  • Look at assumptions of what is and isn't possible in terms of your dreams and aspirations
Verbalise what you want to do, and work towards doing it
  • Find purpose and meaning within life as it is now
Making the most of he things you have to do
  • The "script" hope writes is very different to the script "fear" writes...
Fear script can be toxic...dare to hope for a brighter script
Put it out there
Don't be self effacing... Just share and tell others what you need


Strategies to deal with stress can be

Defensive
My work short term, but really not helpful or healthy 
Drinking
Smoking
Aggression
Shouting

Assertive
Effective and heathy options 
Exercise
Works longer term
Meditation

Strategies to cope with fears/worries/anxieties
  • What are you doing that works?
  • What do you need help with?
Quick reference strategy guide
  • Awareness check ....breathe in love, breathe out fear
  • Reality check test the worry with a trusted friend
  • Flip the coin
  • Reframe 
  • Time frame
Bring compassion to yourself, bring back the time to achievable positives 
  • Stepping stones
Break it own to manageable chunks
  • Say it out loud
The worry, the fear, the dream... Don't ave to be able to fix it
  • Role reversal
  • Embrace your fear..
. Like talking to a fearful child...yourself...
  • Engage support...identify strengths of team members
  • Validate your efforts
Complex situation...each person does it differently
I am a swan....serene on the surface, paddling like crazy to stay afloat!
  • Find time to rest
  • Celebrate the present
Exercise and secondary breast cancer

Prevailing attitude, wrap in cotton wool
Exercise helps during treatment
A little more care is needed when having secondary cancer
Regular exercise 30 minutes 5 x a week
FATIGUE most prevalent and distressing symptom
Managing fatigue
Exercise...improves anxiety levels....anxiety can increase fatigue through stress
Different activities work...walking...dancing...bird watching..lol...dancing in the nude!
Exercise, helps you feel better

Moderate activity 3-5 hours when you can
Walking...highly recommended
Tai chi, qi gong and yoga
Stretching opens the muscles and helps the lymphatic system

Resistance exercises
Post treatment
Light weights more reps
Boosts bone strength
Resistance bands
Seated exercise effective for upper body
Meditation - exercise for the mind
Calm the mind and relax the body

Bone mets
Bone weakening risk of fracture
Weight bearing -walking -bands
Avoid high impact activities such as jogging

Lung mets
Breathlessness coughing pain
Avoid cold or very dry conditions...warm water program's are best
Pursed lip breathing reduces air pressure
Easier for lungs to expand and contract

Brain mets
Balance probs possible, be selective to avoid risk.
Exercise bike
Exercise with a friend

Anaemia
Tire easily
Bloods reduced capacity to carry oxygen

Water
Warm to hot - Hydrotherapy benefits
Cool to cold - invigorates and stimulates
Exercising in the pool
  • Whole body
YWCA ENCORE 8 week land and pool program
Waves warm water exercise program, arthritis Victoria
Hydrotherapy

Aim to be physically active

Art therapy....
Started with the positives...what I wnt to focus on- being a strong role model...loving my family, following the journey, living to be old, enjoying the now



I found it hard to look at the negatives... Death, a life cut short, leaving my story unfinished ...the final curtain



We finished with sharing positive affirmations with each other...
A very powerful session... Teary..harder than I thought it would be...and deep...

Friday, March 14, 2014

Another day another track

Writing this in the little hut for marshals listening to the much quieter F1 cars. Adelaide was brilliant,  had a wonderful drive home...and now back into it.
The body is holding up pretty well, a few aches...elbow is a new one...and hips are not really improving... am a bit over panicking at each new pain, but I guess that is my new normal!
Just having a giggle watching the photographers as they check each pic they take...ahh digital.