Sunday, May 18, 2014

Update

Well, this weekend I have missed out on a race meeting...due to being tired, and having a big meeting next weekend, so... Taking it easy.
Last week was rads every day... And work, and extra driving... Yes I know I am doing too much... But... Ok I have no excuse...so relaxing this weekend.
Pain has still been an issue... I ended up getting some fentanyl patches which I used last weekend to see me through the field of women... And took it off Sunday night before driving around. My beautiful sister was down from Queensland, and she drove me around on Friday, then we trained it and Michael drove over the weekend.
Wednesday was an extra long work day... Waking with a migraine did not help... So I had Panadol osteo 6 hourly and ibuprofen 8 hourly, got it into the background a bit.... It was the Open night at school, so I eventually went home after 9pm and popped a patch on and had an endone as well... 
Thursday I couldn't believe I woke up with an even bigger migraine...this time including nausea and spewing... Arghhh. Hoping it is the tension headaches we put the last lot down to....it hung around most of the day... I did take Thursday off, and Michael drove me around, got some nurofen migraine stuff and maxolan to reduce nausea... It subsided, I slept most of the day... 
Saw the breast surgeon as the nurse wanted me to come back after I was put on antibiotics when the stitches were taken out... Still a bit red and achy around the under arm, but he was happy it was heading in the right direction.
In the evening was the long awaited Talent Quest... With my son in the rafters on the lights and my lovely daughter part of a dance team... Brilliant night, glad I had the sleep.
Friday, woke with the migraine again... Can't believe this... But my neck is super stiff, so continued with the analgesics ... It subsided a bit... Did the work thing, then home to endone.
Over the weekend I can feel the migraine in the background, but not full on... Drinking lots, having green tea, taking it easy, still getting out for a walk. The pain is still there in my hips... This is getting annoying... I see the rads onc tomorrow... And have my last rads session....
Tired, not so emotional, just wanting to feel better... The patch is good, I feel mentally focused, more so than with the endone, but needing the endone for the ongoing hip pain, particularly when lying down, so sleep is a bit of an issue! 
Well on we go...

Thursday, May 15, 2014

Field of Women

An emotional event. I was invited with a bunch of other people to be available for media comment. No one spoke to me specifically,  but it was great to be a part of such an amazing event. Hope funds for a cure are raised quickly.

Tuesday, May 13, 2014

Week 1 of Rads done

So, once I got the call from ROV it was full steam ahead with planning CT and straight into the radiation treatment. 10 days starting last Tuesday.. Had Friday off work to rest and relax.
Driving home after day 1 Rads I was in a fair bit of pain... Weird, but called a flare up...which is good means the Rads are hitting the right spots.
So today is day onc day, denosumab, and just waiting to see onc now...hmmm