well... ya know.... Mr R was warning me from day one, that the sheer size of the mass meant the likelyhood that some DCIS had escaped to become invasive breast cancer was very likely, particularly as I had noticed the right breast was, well... looking at it now, two cup sizes bigger than the left...
And so yesterday I put off the phone call.... had a lovely long shower.. was very happy there was little ooze on the gauze pad which was over the drain hole...and was feeling really quite fit and healthy... so what... there was no longer the awesome cleavage... but there was me...and hey... doctors have been known to be wrong... I feel and have been feeling really healthy, really strong... all of the DCIS must have been cut out... and he would be happy to tell me that... no sign in the sentinel node... all good... think about reconstruction...after all what are the physical signs of cancer??? high temp? feeling sick??? had none of them... I am sure I'll be right.
Better make that phone call... just to confirm...
crap...
"I have some not good news Suzanne" that's not what I wanted to hear... I tried to write down what was said... as it went into t bit of a blur...he was full of empathy, and the report had just come in... so he was deciphering it as we went...will get the full run down at Friday's appt (now moved to the Berwick rooms at 11am)
- as well as the DCIS in the breast tissue there were several invasive tumours ranging in size from 18mm down to 2mm.
- Tumour cells were found in the lymph nodes removed
- rest of the lymph nodes will need to be removed
- once the wounds are healed -> Chemo, Hormone and radiation therapy to get rid of this shit in my system (think I may have to put a mature content label on this blog with my swearing..whoops)
crap crap crap.....
but weirdly I felt ok... I was still feeling strong... fit and healthy... I can beat this... and I will
Talked to a friend last night... Lauren... who was the first person I shared this blog with... being a nurse, she wanted to see the pics... don't know if she read any of it... but it's cool...
Last night it started to sink in, and although I was massively tired... I couldn't bring myself to go to bed.... today... feeling less fit and a bit blobby... more teary.
It's affecting my wonderful big boy... who is refusing to take his grumpines out on me, so the kids get growled at... which makes me sad... but what can you do?? He has people to talk to... I am trying to protect him from what I am really feeling by letting it out here rather than to him...and putting on that strong brave face... although he knows it's a mask, as I go all kinda quiet... not like me at all... well if I open my mouth everything I'm thinking will spew out, best to keep it inside for now, and let it spew out through my fingers here.
The kids were great - I told the boys as we were playing halo, and we made light of shooting all the cancer cells and blowing them to bits...Jack was straight onto it..."but mum, I thought they cut it all out?" yep... gotta get those rascally ones that escaped. Nat once again was quiet - told her when she came back from dance. Lots of cuddles.
Tired today.... gotta go and do stuff, move around, try and shift some weight, get fitter to fight this fight... I'm tough and stubborn... and don't give up easy...which is probably good.
This time the first people I told were the best friends.. Kate, who has her own cancer issues to deal with, is already volunteering to sit with me through the chemo... she has already gone through that herself... you really find out the depth of friendship... I feel sooo bad, because I hate hospitals, and will do anything to avoid them... I knew Kate had a great support network (mate a family full of nurses) I took the cowards way out... although, as I was bursting into tears everytime I thought about her it was a good thing... I wouldn't have been able to be the strong person I am now... and will be in the future for her...
well... got to go and find some clothes that will be easier to wear after the next surgery... flanny shirts are in this winter aren't they? LOL. I need button up fronts, as even now the t-shirts are shitting me...
LMAO, and I am the clothing designer... hmmm something for me to do when I have the house to myself :) and recovering.
Yay... my little sisters are coming to visit this evening... we work on the same laugh therapy stuff together...Tink is down from Queensland - no not for me, this was already planned... hehehe
Somewhere for me to vent... On the 1st April 2010 I was diagnosed with breast cancer... April 2013 a bone scan confirmed bone mets (advanced breast cancer). So now facing a future shorter than I had planned. Fighting the good fight, and enjoying each day I have.
Thursday, April 29, 2010
Wednesday, April 28, 2010
45 minutes or so
til I find out where my journey will be heading....
nervous ??? much... hell yeah
waiting on the pathology report for the sentinel node to see how far the cancer has ...or hasn't... travelled
On a brighter note... got home from hospital yesterday, and managed to put my fake prosthesis in my bra... it wasn't as uncomfortable as I thought it would be... although I will have to do a bit of bra reworking... to get rid of the underwires from the left side, they dig in to the fresh wound a little.
Have our tickets for Field of women at the MCG next week - Kirsty and Mic will be there with me... will have to make sure I bring a lot of tissues.
nervous ??? much... hell yeah
waiting on the pathology report for the sentinel node to see how far the cancer has ...or hasn't... travelled
On a brighter note... got home from hospital yesterday, and managed to put my fake prosthesis in my bra... it wasn't as uncomfortable as I thought it would be... although I will have to do a bit of bra reworking... to get rid of the underwires from the left side, they dig in to the fresh wound a little.
Have our tickets for Field of women at the MCG next week - Kirsty and Mic will be there with me... will have to make sure I bring a lot of tissues.
Tuesday, April 27, 2010
Still here
Still waiting for the drain to be removed so I can go home.
Very annoying to have an itchy nipple and nothing to scratch. Low pain, unless I move, them there is a bit of tugging on the steristrips. Ouchie tummy just got jabbed again. Anti clotting stuff yay. Just waiting on breaky. Went down to the chapel yesterday, prayer can't hurt. Mic will be marshalling the kiddies. Ah I must send my eldest child a msg of love. Cheeky bugger he is. Well I find out the next stage tomorrow, wednesday. We shall see.
Very annoying to have an itchy nipple and nothing to scratch. Low pain, unless I move, them there is a bit of tugging on the steristrips. Ouchie tummy just got jabbed again. Anti clotting stuff yay. Just waiting on breaky. Went down to the chapel yesterday, prayer can't hurt. Mic will be marshalling the kiddies. Ah I must send my eldest child a msg of love. Cheeky bugger he is. Well I find out the next stage tomorrow, wednesday. We shall see.
Sunday, April 25, 2010
It's done
How do I put go to words how I feel? Numb still. Surgery was on friday morning now it's sunday night, and finally I can let some tears flow. Been strong, but now I am alone and can let some of my grief out. Surgery went well even though I tried to bribe the bed pusher to go to the pub instead. I nearly lost it in the surgery waiting area, but had to stay strong for my boy, couldn't let him know how scared I was. The post op drugs were good, felt very little pain. Slept most of friday, and mic was there every time I opened my eyes. The kids came in, hope I didn't scare them too much. Saturday was shower, finally some food, see surgeon - he is happy with his work and gives me arm raising exercises. Them visitors mum, nat and mic followed by Shaun and mel, them kate, them santa Chelle and sam. The day flew and I was exhausted. Today, ANZAC day was slower, got to read some. They took out one of the two drainage tubes hope it settles down. Now it's late and sleep won't come, tears however do too easily. Pain killers are not doing their job. Hope this posts ok.
Friday, April 23, 2010
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