And just in time the new wig arrives

And just in time the new wig arrives

Starting to fall out by the handfull no

Starting to fall out by the handfull now, guess it won't be long now til it's all gone.

Icky oozy blah

Still think I am looking too healthy to be as sick as I apparently am... my scalp is definitely changing... the short cut is quite comfortable... and looks ok (well scarily I look like Judith Lucy LMAO)... curls hide a ton of sins... hair is still thick and healthy looking, but scalp is itchy and feels very dry... thinking about whipping up an aromatherapy oil mask thingy to soak my head in.

Leaking drain site is ok, after a bit of a panic yesterday with redness and discharge, rush to the surgeon to check, and all is draining nicely, no infection... Love Mic to bits, for his panicking, I guess he is feeling so helpless he wants to makes sure everything goes ok... so when there was the hint of redness around the wound, although I had no temp, he wanted me to get it checked... All the panic was because I have started chemo and the big warnings about being wary about developing any infections. My body must still be in control of itself pretty well, and although the surgeon agreed there were going to be lurgies in the drain site, I have been able to fend them off... go me. :)

Lost more weight... got on the wiifit this morning... did some yoga and stretches, wonder if that is assisting the ooze, freeing everything up anyway. Will have to get onto that more often. Wonder what other exercises have help people????

Taste wise is not too bad today... haven't even had any fruit tingles...but the cordial is going well... although flushing so much water through my system catches up at night...grrrr, at least it was only once last night.
Off to get the kids... I think they are loving that bit, that Mum gets to pick them up most days, pretty early - leaving them in after school care, trying to not disrupt their lives too much, and it means if I am not up to getting them Mic can get them a bit later, so not tied in.

what a week

What a week of total physical and emotional turmoil...
The getting the chemo part was not too bad, apart from the nurse yelling at me to relax... sheesh... like that will work... she was trying to use the vein which was recently used for the axilla clearance surgery... and the anesthetist was not too gentle on that one so she couldn't get it in... gave up and went for another vein....and I ended up feeling dripping down the end of my finger... Yeah I bled all over the floor. What a comedy of errors.... hope I don't get her again... I was nervous enough as it was, and she did not add to it. I think that is one of the reasons I was so giggly on the forums etc... it was still all very surreal, and the anti nausea stuff was working nicely.
I was so comfortable, when Mum picked me up from the hospital we headed over to Chaddy for a coffee. I kept up my medication, and was using fruit tingles to the max - they rock for keeping the nausea at bay.
The rest of the week was a whirl. weary, ct and bone scan on Friday. Weary.... too weary to even look at blogs or forums...
Icky metallic blood taste in my mouth and nose...
Went into the city for a geocaching flash mob on saturday morning... thought I was feeling ok... guess I figured out my limits and spent most of sunday in and out of snoozing on the couch.
Oh My sister came over on Saturday to chop my locks... I needed to do something before it falls out.
The drain site is still uncomfortable... been good with checking temps... no issues there... very weary.... bit headachy...
Made it down to get my weekly blood test today... and about to get the kids... then a snooze..
Haven't had any nausea drug for the past 2 days... apart from fruit tingles... and finally back on a regular track (hehehe)
Still feeling very vague... and very weary..... more later

Chemo round 1

Well so far so good. Had a few bleagh feelings and a bit teary in the middle of the night. Hope the drip comes out shortly and I can get in the shower and head home. Bit headachey but I have been reading without specs. Will add more when am on comp not phone

The Road to healing

Well... ya know I was feeling no pain, feeling fit and healthy and happy until they started to "fix" my cancer... and tomorrow we take the very scary step...the next step in healing, which will make me feel bleagh... Chemo.

Ahhh well first things first... my babies were wonderful to me over the weekend, particularly Sunday - Mother's day. Pity I was in so much pain. I think I knocked the drain bottle sutures, and I know one of my babies accidentally sat on it, pulling it again... so panadol wasn't doing it for me over the weekend.... and then Mic suggested I should cut down on the 4 hourly panadol... hmmmm easy for him to say huh.
I tried... and I cried... and it hurt... and I was miserable...I was tired, but I got out for a walk on Sunday... don't know if that made the owie worse...
I was getting the drain out Monday morning, so no point getting all drastic Sunday night.... Couldn't even stay up to watch Webber win in Spain...but that meant my back was over lying flat by 5.30am

Follow up appt with the surgeon to remove the drain went well... got my doctor's certificate..."when do I want to go back to work... hmmm I dunno"   and he discussed all the tricky bits...
Did the kids know... the nicest kids can go feral
Sex... take time, and intimacy will return... talk, and love and laugh...
Family and work stuff
Wigs... I will be bald pretty soon. etc etc etc
Brilliant... once the drain was taken out (Mic said it was in about 20cm... OMG, no wonder I couldn't move my arm) I had instant relief... still muscular aches around the shoulder from the axillary clearance, but no sharp pain any more... that alone put a spring in my step, the sun was shining....and off to the imaging place to get the gated blood pool scan.
Had a lovely guy, doing the blood taking... he was sooooo gentle, and would be doing the CT and Bone scan on Friday too. Did not feel a thing, he put in a bung thingy in my arm - gave me something, I had to wait half an hour, then he took my blood and added the radioactive stuff to it... had to wait another 15 minutes until he reinjected my live blood, and put me under the big camera to take pics of how it was travelling to my heart. This test is to see how much the chemo affects my heart... what fun.

Reading some blogs of cancer fighters.... the hair thing comes to mind... of course mine is looking fab at the moment..
Hair

but they reckon with this cancer I will lose it within a week... well... I have had a shaved head before.... time to break out the clippers before the drains get totally clogged up with my mop. I offered to let the kids cut it - how often would kids get that opportunity (well I read that on one of the inspirational blogs I have been reading) but they looked at me a bit confused.
We shall get there.....  and now, for a night's sleep without a drain to piss me off or hurt.... yay
Ohhh and have cut back on panadol already. Did some Pilates moves... thinking about getting some stuff to keep me regular... hospital seems to clog me up.

Field of Women at the MCG

Last night's MCG experience was exhausting and emotional...
I tried to hold back the tears, yet again, because I knew it would make it harder for Mic and Kirsty....but they flowed....
met up with survivors... and felt supported that I would not be walking this path alone...

Beautiful day today... went shopping with Mic... still getting tired really quickly. Will go for a walk this arvo... maybe set a geocache or two if I can organise it.